According to the Decision of the Ministry of Health and Social Welfare of the Republic of Srpska, the Centre for Rare Diseases has been established in the University Clinical Centre of the Republic of Srpska.

The Centre represents scientific and expert base. Its activities include creating the standards and clinical practice guidelines for prevention, diagnostics, treatment and rehabilitation of people with rare diseases, providing the highly specialised education and training to healthcare workers in the field of rare diseases, exchange of information and experience in treatment of rare diseases between health care institutions, as well as establishing and maintaining close cooperation with the European Reference Networks for rare diseases.

One of the most significant activities of the Centre is record-keeping for the territory of the Republic of Srpska in accordance with the legislation and by guaranteeing the protection of personal and genetic data. By getting an insight into the types of rare diseases and the number of people suffering from rare diseases in our country, preconditions for improving health care of this group of patients will be created.

Patients suffering from rare diseases (i.e. their parents/guardians) can visit the Centre and bring their personal and medical documentation on every weekday or they can contact the Centre by the telephone number 051/ 342 -316 in the period from 11:00 a.m. to 2:00 p.m. in order to register themselves. The Centre is located in the Maternity building (Paprikovac location), beside the Genetic Counselling Centre of the Paediatric Clinic.